The ALSP Community was together for the first time to interact with physicians, scientists and researchers who understand the complexities of ALSP and are eager to partner with the ALSP Community to make a difference in the lives of those affected by ALSP. Together we will accomplish our vision of a better quality of life and the first survivor of ALSP.
A special thank you to Mathew Blurton-Jones and the Blurton-Jones lab, the California Institute for Regenerative Medicine, the University of California Irvine and Randy Berg at the Sue & Bill Gross Stem Cell Research Center for hosting this event, the physicians, scientists and researchers who have dedicated their life to helping those diagnosed with devastating illnesses like ALSP, the patients and caregivers who are truly the experts in ALSP. You found your voice before, during and after the conference and there is no doubt you will continue to “Find Your Voice.”
Together we are all making a difference in the lives of those affected by ALSP.