SUPPORT. AWARENESS. CURE ALSP.

Sisters’ Hope Foundation is a 501(c)3 non-profit organization dedicated to ALSP patients around the world. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and create connections for the ALSP community. Our mission is to see the first survivor of ALSP.

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COMMUNITY

How Can We Help?

ALSP stands for Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia. It is a rare genetic disease that affects the brain and nervous system. Learn more about it from the ALSP Community.

2024 ALSP Community Conference

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GET INVOLVED & Make a Difference

We have event and volunteer opportunities that span all interests and time commitments. Our donors and volunteers range from individuals to corporate teams and sponsors. We can’t do this alone so please consider helping Sisters’ Hope Foundation and the ALSP community in making a difference.

Committees & Volunteers

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PATIENT, FAMILY & CARE PARTNER RESOURCES
CLINICIAN & RESEARCHER RESOURCES

Prioritize your self care first, because you can’t be there for them if you can’t love yourself and take care of you.

-Lisa & Janice

ALSP Stories From Our Community

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CLINICIAN RESOURCES

Medical & Scientific Advisory Council

We are fortunate to partner with some of the most prestigious academic and research institutions in the world.

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Our Sponsors

Our Affiliations

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