SUPPORT. AWARENESS. CURE ALSP.
Sisters’ Hope Foundation is a 501(c)3 non-profit organization dedicated to ALSP patients around the world. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and create connections for the ALSP community. Our mission is to see the first survivor of ALSP.
SCHEDULE A 1-1 MEETING WITH OUR TEAM
2024 ALSP Community Conference
LEARN MOREGET INVOLVED & Make a Difference
We have event and volunteer opportunities that span all interests and time commitments. Our donors and volunteers range from individuals to corporate teams and sponsors. We can’t do this alone so please consider helping Sisters’ Hope Foundation and the ALSP community in making a difference.
Committees & Volunteers
LEARN MOREPATIENT, FAMILY & CARE PARTNER RESOURCES
CLINICIAN & RESEARCHER RESOURCES
“Prioritize your self care first, because you can’t be there for them if you can’t love yourself and take care of you.“
-Lisa & Janice
ALSP Stories From Our Community
Find Your Voice
REGISTER TO JOIN
Join Our Community
Access Our Resource Center
Stay current with the latest research and publications and access our archive of top-tier clinical resources.
MANAGE Your Medical Diary
Manage your health and improve communication with healthcare providers with your Medical Diary
KEEP TRACK OF KEY EVENTS
Stay up to date on community events and track the ones you attended.