ALSP News

Vigil Neuroscience reports Interim Data from Phase 2 Clinical Trial

Vigil Neuroscience reports Interim Data from Phase 2 Clinical Trial

Vigil Neuroscience presented their findings from 6 patients during the first 6 months of the Phase 2 Ignite proof-of-concept clinical...
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Potential use of glucocorticosteroids (GCs) in CSF1R mutation carriers

Potential use of glucocorticosteroids (GCs) in CSF1R mutation carriers

The thoughts presented below by Drs. Dulski, Stanley, Chitu and Wszolek have significant limitations and must be read only as...
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Genetic Testing Survey

Genetic Testing Survey

Survey about genetic testing Vigil Neuroscience, a biotechnology company researching potential treatments for ALSP, is engaging with the ALSP patient...
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Breaking News!

Breaking News!

Effective October 1, 2023, ALSP will have an ICD 10 Code. Know Your Code…G93.44 for ALSP! ALSP Community: What can...
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Become a Team Leader for our Virtual 5K!

Become a Team Leader for our Virtual 5K!

Interested in the ALSP Run N' Roll Raleigh but not local to Raleigh, NC? No worries! Participate virtually from anywhere...
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ALSP Run N’ Roll – 5K For The Cure

ALSP Run N’ Roll – 5K For The Cure

We need your help spreading the word on our 1st in-person Run N’ Roll 5K. If you are not local...
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Cure ALSP

Cure ALSP

Sisters' Hope Foundation has been working tirelessly for the past 3 years to support our ALSP community, raise awareness for...
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2023 ALSP Community Conference

2023 ALSP Community Conference

The ALSP Community was together for the first time to interact with physicians, scientists and researchers who understand the complexities...
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Heidi Edwards Featured on People and Perspectives Radio Program

Heidi Edwards Featured on People and Perspectives Radio Program

THE CENTRAL PA PEOPLE AND PERSPECTIVES PODCAST features Jenna Clay and Christine Ricci who each week discuss a topic that...
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Conference hosted by UCI and sponsored by CIRM

Conference hosted by UCI and sponsored by CIRM

March 25-27, 2023, over 60 doctors, researchers, ALSP patients and caregivers gathered at the University of California, Irvine to partner...
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The 1st Global ALSP Medical & Scientific Advisory Council

The 1st Global ALSP Medical & Scientific Advisory Council

Sisters’ Hope Foundation is excited to launch the 1st Global ALSP Medical & Scientific Advisory Council. The SHF Medical & Scientific...
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ALSP Aware Program from Vigil Neuroscience

ALSP Aware Program from Vigil Neuroscience

Since Vigil Neuroscience was founded in 2020, our team has been dedicated to developing a treatment for ALSP. We are...
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Bridge Lighting Schedule

Bridge Lighting Schedule

ALSP Awareness Month 2023  Bridge Lighting Pictures and Schedule "My goal in 2022 was for just one person to see...
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American Brain Foundation

American Brain Foundation

Thanks to the hard work and dedication of our Board Member, Kim Cade, ALSP has been added to the Diseases...
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“Find Your Voice”

“Find Your Voice”

It's "Find Your Voice" Friday! Last year was hard on me for various reasons but one day I decided I...
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ALSP Community Webinar

ALSP Community Webinar

Vigil Neuroscience recently organized and sponsored a webinar pulling together advocacy and research for the ALSP community. Vigil is dedicated...
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Cacie Finley (May 22, 1984 – January 24, 2023)

Cacie Finley (May 22, 1984 – January 24, 2023)

The ALSP Community has lost a beautiful woman, Cacie was known in our small community from the day she connected...
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Phase 1 Clinical Trial Evaluating VGL101

Phase 1 Clinical Trial Evaluating VGL101

When you start a non-profit to save your family from a devastating neurodegenerative disease, it is really difficult to “take...
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Please join Sisters’ Hope Foundation in welcoming our newest Board Members

Please join Sisters’ Hope Foundation in welcoming our newest Board Members

Erin Sullivan Erin will be leading the Patient & Caregiver Support Group meetings beginning in 2023. Erin has been an...
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Virtual Walk/Run for a Cure 2022

Virtual Walk/Run for a Cure 2022

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EndALSP Fundraiser was a huge success!

EndALSP Fundraiser was a huge success!

Featured in THE PORTERVILLE RECORDER ALSP fundraiser raises more than $20,000   More than 200 people attended the End ALSP...
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