ALSP News

Hospice as a Resource for Patient & Family

Hospice as a Resource for Patient & Family

Join us to discuss Hospice as a Resource for Patient & Family with Wellspan Hospice. "The Road Less Traveled -...
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Sundowning

Sundowning

I hope you all remembered to change your clocks, spring forward! For many of us this is an exciting time...
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Jeff’s Journey: Kim’s Voice

Jeff’s Journey: Kim’s Voice

Thanksgiving week, 2018, I went on a hike with my wife and my brother, Jeff. After a mile of walking,...
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Being Holly: A Caregiver Story

Being Holly: A Caregiver Story

Being Holly’s Caregiver: My Life Caring for an ALSP Patient My name is April Aurentz and I am the office...
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A Sister’s Hope: the Story Behind Sisters’ Hope Foundation

A Sister’s Hope: the Story Behind Sisters’ Hope Foundation

I’m Heidi Edwards, President and Founder of Sisters' Hope Foundation, a non-profit organization supporting those affected by adult-onset leukoencephalopathy with...
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March is ALSP Awareness Month

March is ALSP Awareness Month

ALSP Awareness Month 2022 is officially underway, and Sisters’ Hope Foundation wants you to help us raise awareness and celebrate this...
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Bridging the Gap in ALSP Awareness

Bridging the Gap in ALSP Awareness

We are counting down to ALSP Awareness Month! The importance of March and why it has been chosen as ALSP...
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ALSP Awareness Month

ALSP Awareness Month

We are so excited to be one week away from ALSP Awareness Month 2022. Sisters’ Hope Foundation has exciting events,...
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Mayo Clinic, Florida

Mayo Clinic, Florida

February 15, 2022, did not start out as every other day. I had flown to Jacksonville, Florida the day prior...
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Frontiers Neurology – ALSP Publication

I am pleased to share with you the ALSP position paper which is now published in Frontiers Neurology: https://doi.org/10.3389/fneur.2021.788168. This...
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Josh – ALSP Story & Fundraiser

Josh – ALSP Story & Fundraiser

Josh's Story and T-shirt Fundraiser:   If you are interested in a shirt, the orders need to be placed and...
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Alvernia University Magazine Winter 2022

Alvernia University Magazine Winter 2022

Alvernia University Magazine Winter 2022:   Did you know: The sisters, Heather Brenneman Boyer, Heidi Brenneman Edwards and Holly Brenneman...
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ALSP Patient Registry app is available!

Vigil and the Sisters' Hope Foundation are proud to announce the launch of the ALSP Registry app. Patients and family...
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Natural History Study – Dr. Gelfand, UCSF

Great news! The University of California San Francisco site is now open! The University of California San Francisco is now...
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Life’s A Tripp Shirt Fundraiser

Life’s A Tripp Shirt Fundraiser

Today we are rolling out the Life's a Tripp shirt fundraiser for ALSP patient Albert Tripp! The online shop is...
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Happy New Year!

Happy New Year!

A New Year calls for making goals. SHF has set their fundraising goal for 2022! It's a hefty goal but...
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A Guide for Understanding ALSP & A Guide for Caregivers

It's amazing what can happen when we work as a team to raise awareness and provide support for rare diseases....
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Natural History Study – Open Sites

Great news! The Mayo Clinic in Jacksonville Florida, St. Joseph's Health Care in London Ontario and Parkinson's Disease & Movement...
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Genetic Testing in Canada is now available through Invitae.

Genetic Testing in Canada is now available through Invitae.

Genetic Testing for ALSP patients in Canada: If you are an ALSP patient located in Canada and are interested in...
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Check out what all the fun was about at “Hope for the Holidays”

Check out what all the fun was about at “Hope for the Holidays”

VIDEO: Thank you to everyone who made our 'Hope for the Holidays' auction a huge success! Check out what all...
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New Merchandise Available in the Online Store

New Merchandise Available in the Online Store

You do not want to miss out on our newest merchandise available from Sisters' Hope Foundation. Your purchase directly helps...
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