Raising Awareness for ALSP

  Thank you to Kim and Janie for raising awareness and hosting the END ALSP Fundraiser in Porterville, CA on Sept 17.

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Betty Ramsey (June 24, 1959 – August 25, 2022)

It is with a heavy heart we share the passing of another ALSP patient. Betty passed away on August 25, 2022. In the words of […]

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American Brain Foundation – ALSP Article

Kim has been a huge advocate for ALSP and Sisters’ Hope Foundation. This article is a true representation of Kim’s dedication to her family and […]

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VGL101 Granted Orphan Drug Designation

Exciting news for ALSP patients! VGL101 received U.S. Food and Drug Administration (FDA) orphan drug designation: In July, the FDA granted orphan drug designation to VGL101 […]

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ALSP Community mourns the loss

It is with a heavy heart that we share the passing of an ALSP family member. Mark lost his battle with ALSP on Monday, August […]

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Life Changes in the Blink of an Eye

You never know how much you have until suddenly you don’t. In other words, we take things for granted all the time. Nothing prepares you […]

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My husband’s journey

Daniel and I married in 2006.  At the time he told me that he had family members who had been diagnosed with Pick’s disease which […]

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Vigil Neuro Expands VGL101 Phase 1 Trial to Australia

Vigil Neuroscience Expands VGL101 Phase 1 Trial to Australia – Received approval from the Human Research Ethics Committee in Australia to initiate a Phase 1 […]

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Join the ALSP registry

During the month of June, Alzheimer’s and Brain Awareness month, contribute to furthering ALSP understanding and research by donating to the Sisters’ Hope Foundation! Vigil […]

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Sisters’ Hope Foundation added to NIH – GARD

Sisters’ Hope Foundation has been added to the NIH – Genetic and Rare Diseases Information Center under the disease name Hereditary Diffuse Leukoencephalopathy with spheroids. […]

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