Kim’s ALSP Story

“In July, I had a genetics test done to see if I carry the CSF1R gene variant the same variant that has caused adult onset […]

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Vigil Neuroscience Enrolls First Subject in ALSP Study

Vigil Neuroscience, a biotechnology company harnessing the power of microglia for the treatment of neurodegenerative diseases, announced today the enrollment of the first subject in […]

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Vigil Neuroscience hopes to eventually target ALSP

Vigil Neuroscience hopes to eventually target ALSP

Vigil Neuroscience has revealed the first condition that it will target: a rare, genetic neurodegenerative disorder called ALSP, or adult-onset leukoencephalopathy with axonal spheroids and […]

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Vigil Neuro Announces It Is Launching ALSP Programs

Vigil Neuro

Vigil is conducting an observational natural history study with ALSP patients to better understand the disease and help us inform the clinical development of VGL101.  […]

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Bone Marrow Transplant Study on Treatment of CSF1R-Related Leukoencephalopathy

New Study on Treatment of CSF1R-Related Leukoencephalopathy

This is the largest series of patients with CSF1R-related leukoencephalopathy receiving HSCT. The study concludes that HSCT can stabilize the disease in some patients. Variability […]

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How To Host a Pink Lemonade Fundraiser for Sisters’ Hope Foundation

Pink Lemonade Fundraiser

A lemonade stand fundraiser works best during the summer months. Hot days equals lots of thirsty supporters! What you’ll need for your fundraiser: A lemonade […]

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Heidi Edwards’ Story

I’m Heidi Edwards, President and founder of Sisters Hope Foundation, a non-profit organization supporting families struggling with Hereditary Diffuse leukodystrophy with spheroids or HDLS. HDLS […]

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