Heidi Edwards Featured on People and Perspectives Radio Program
THE CENTRAL PA PEOPLE AND PERSPECTIVES PODCAST features Jenna Clay and Christine Ricci who each week discuss a topic that affects the people of Central […]
Read More....ALSP Aware Program from Vigil Neuroscience
Since Vigil Neuroscience was founded in 2020, our team has been dedicated to developing a treatment for ALSP. We are very pleased that our efforts […]
Read More....Phase 1 Clinical Trial Evaluating VGL101
When you start a non-profit to save your family from a devastating neurodegenerative disease, it is really difficult to “take the emotion out of your […]
Read More....Please join Sisters’ Hope Foundation in welcoming our newest Board Members
Erin Sullivan Erin will be leading the Patient & Caregiver Support Group meetings beginning in 2023. Erin has been an advocate for ALSP since connecting […]
Read More....Kim’s ALSP Story
“In July, I had a genetics test done to see if I carry the CSF1R gene variant the same variant that has caused adult onset […]
Read More....Vigil Neuroscience Enrolls First Subject in ALSP Study
Vigil Neuroscience, a biotechnology company harnessing the power of microglia for the treatment of neurodegenerative diseases, announced today the enrollment of the first subject in […]
Read More....Vigil Neuroscience hopes to eventually target ALSP
Vigil Neuroscience has revealed the first condition that it will target: a rare, genetic neurodegenerative disorder called ALSP, or adult-onset leukoencephalopathy with axonal spheroids and […]
Read More....Vigil Neuro Announces It Is Launching ALSP Programs
Vigil is conducting an observational natural history study with ALSP patients to better understand the disease and help us inform the clinical development of VGL101. […]
Read More....Bone Marrow Transplant Study on Treatment of CSF1R-Related Leukoencephalopathy
This is the largest series of patients with CSF1R-related leukoencephalopathy receiving HSCT. The study concludes that HSCT can stabilize the disease in some patients. Variability […]
Read More....How To Host a Pink Lemonade Fundraiser for Sisters’ Hope Foundation
A lemonade stand fundraiser works best during the summer months. Hot days equals lots of thirsty supporters! What you’ll need for your fundraiser: A lemonade […]
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