NEWS & ANNUAL REPORTS

IMPORTANT

ALSP Patient-led Listening Session by Sisters’ Hope Foundation

Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia, also known as ALSP is the disease that brings us before the FDA. Here are the cold hard facts that make ALSP so horrific and devastating. It is a debilitating disease that hits the young in the prime of life, symptom onset typically occurs between 30-50 years of age, leaving in its wake a life cut short, financial ruin, and shattered families…