News
Breaking News!
Effective October 1, 2023, ALSP will have an ICD 10 Code. Know Your Code…G93.44 for ALSP! ALSP Community: What can YOU do to help? It […]
Read More....Become a Team Leader for our Virtual 5K!
Interested in the ALSP Run N’ Roll Raleigh but not local to Raleigh, NC? No worries! Participate virtually from anywhere in the world! Become a […]
Read More....ALSP Run N’ Roll – 5K For The Cure
We need your help spreading the word on our 1st in-person Run N’ Roll 5K. If you are not local to the Raleigh, NC area […]
Read More....Cure ALSP
Sisters’ Hope Foundation has been working tirelessly for the past 3 years to support our ALSP community, raise awareness for this rare disease and find […]
Read More....2023 ALSP Community Conference
The ALSP Community was together for the first time to interact with physicians, scientists and researchers who understand the complexities of ALSP and are eager […]
Read More....Heidi Edwards Featured on People and Perspectives Radio Program
THE CENTRAL PA PEOPLE AND PERSPECTIVES PODCAST features Jenna Clay and Christine Ricci who each week discuss a topic that affects the people of Central […]
Read More....Conference hosted by UCI and sponsored by CIRM
March 25-27, 2023, over 60 doctors, researchers, ALSP patients and caregivers gathered at the University of California, Irvine to partner and address challenges facing ALSP […]
Read More....The 1st Global ALSP Medical & Scientific Advisory Council
Sisters’ Hope Foundation is excited to launch the 1st Global ALSP Medical & Scientific Advisory Council. The SHF Medical & Scientific Advisory Council is comprised of […]
Read More....ALSP Aware Program from Vigil Neuroscience
Since Vigil Neuroscience was founded in 2020, our team has been dedicated to developing a treatment for ALSP. We are very pleased that our efforts […]
Read More....Bridge Lighting Schedule
ALSP Awareness Month 2023 Bridge Lighting Pictures and Schedule “My goal in 2022 was for just one person to see the bridges lit in pink […]
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