Stories
A Journey to Genetic Testing – The Results
“Your test is negative.”… Hearing these words, my husband and I just clung to each other and cried. There are not enough words to express […]
Read More....A Journey to Genetic Testing – Part 2
On an early morning, with sleep in my eyes and coffee in hand, I answered the phone prepared for an hour-long conversation with a genetic […]
Read More....A Journey to Genetic Testing
by Erin Sullivan I often ask myself, “How did I get here?” No one anticipates having a familial genetic mutation that can cause a terminal […]
Read More....“Find Your Voice”
It’s “Find Your Voice” Friday! Last year was hard on me for various reasons but one day I decided I have a voice and I […]
Read More....Cacie Finley (May 22, 1984 – January 24, 2023)
The ALSP Community has lost a beautiful woman, Cacie was known in our small community from the day she connected with Sisters’ Hope Foundation. She […]
Read More....Phase 1 Clinical Trial Evaluating VGL101
When you start a non-profit to save your family from a devastating neurodegenerative disease, it is really difficult to “take the emotion out of your […]
Read More....Betty Ramsey (June 24, 1959 – August 25, 2022)
It is with a heavy heart we share the passing of another ALSP patient. Betty passed away on August 25, 2022. In the words of […]
Read More....American Brain Foundation – ALSP Article
Kim has been a huge advocate for ALSP and Sisters’ Hope Foundation. This article is a true representation of Kim’s dedication to her family and […]
Read More....Life Changes in the Blink of an Eye
You never know how much you have until suddenly you don’t. In other words, we take things for granted all the time. Nothing prepares you […]
Read More....My husband’s journey
Daniel and I married in 2006. At the time he told me that he had family members who had been diagnosed with Pick’s disease which […]
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