Rare Disease Day 2024


The zebra has become the official mascot for rare disease patients. Historically, medical professionals were told that when they “hear hoofbeats,” they should not expect to see a zebra. In other words, look for the more common answer, a horse. Now, we know that one in ten Americans is actually a zebra! It might not be obvious when you look at us, which is why we show our stripes to raise awareness.

Wearing stripes can start a conversation that helps others learn about the prevalence and challenges of rare diseases. Take a picture of your striped look and share it on social media with the hashtags #ShowYourStripes, #RareDiseaseDay and #SistersHopeFoundation to join this celebration of the many faces of rare disease.

Let’s show the world that the ALSP Community is small but mighty by:

Share Your Rare Disease Story: Do you have a rare disease, or a family member with a rare disease? This is the time to share your story. #ShowYourStripes #RareDiseaseDay #SistersHopeFoundation

Social Stripe Out: Post a selfie wearing stripes on social media and encourage your friends, family, and others to do the same.

Get Creative: Gather your friends, family, and community to make a video, photo album, or other creative expression of what it means to Show Your Stripes.



Feb 29 2024
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