Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
Sisters' Hope Foundation is a non-profit corporation registered in the Commonwealth of Pennsylvania and a 501c3. Contributions to Sisters' Hope Foundation are tax deductible to the extent permitted by law. Tax id# 85-4152247
Disclaimer: Sisters’ Hope Foundation is providing the above information to the
best of their knowledge. The organization is not advocating for any particular company
or method. Consultation with a genetic counselor or clinical geneticist prior to and
following testing is recommended. Questions related to your risk of developing
symptoms of ALSP should be directed to your doctor.
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