ULF Scientific Symposium & Family Conference

The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared toward the whole family: Affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in their support network.

Cost to attend in person is $25 per adult and $10 per child, under the age of 18. The fee covers entry to the event and eight meals at the venue.  Attendees are responsible for securing their hotel room(s) and making their own travel arrangements. Scholarships are available to families who are newly diagnosed or are in financial need.

SHF will be hosting an ALSP session on Saturday, June 24 from 1:30 – 5:30. Please consider joining us for this information packed session sponsored by Vigil Neuro.

ULF Scientific Symposium & Family Conference 2023


Jun 22 - 24 2023


All Day
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