United Leukodystrophy Foundation Scientific Symposium and Family Conference – Don’t miss the presentation by Heidi Edwards on June 26 at 3:30pm EST.
Don’t miss the ALSP presentation with Dr. Eichler (Mass General), Dr. Orthmann-Murphy (University of Pennsylvania) and Heidi Edwards (Sisters’ Hope Foundation) on Saturday, June 26 at 2:30 pm – 3:30 pm Central Time.
The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers – outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared towards the whole family: affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in the support network.