Vigil Neuro ALSP Community Webinar

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Plan to join the free ALSP Community Webinar on January 26!

Dear community members,

On January 26th, 2023, from 12:30 -1:30 PM EST Sisters’ Hope Foundation will join with other leaders in patient advocacy for a very special ALSP update webinar that is being sponsored by Vigil Neuroscience, a clinical-stage biotechnology company working to develop a new treatment for ALSP. The program will include:

  1. An update from Vigil Neuroscience including an overview of their Natural History Study and Phase 2 Clinical Trial
  2. An update on ALSP from Dr. Jennifer Orthmann-Murphy, MD, PhD, Assistant Professor of Neurology a University of Pennsylvania Medicine. Dr. Orthmann-Murphy is a leading expert in ALSP and white matter disorders.
  3. A review of key objectives and intro to leaders from leukodystrophy focused Patient Advocacy Organizations
  4. A question-and-answer session with the panel speakers.  Participants/registrants are invited to submit questions in advance of the program to

We hope you will plan to join us for this special webinar event that is specifically designed for members of the ALSP community. This will be a great opportunity to learn more about research that could lead to a new treatment, build stronger connections in the ALSP community and help us all stay updated on available support and resources.  We know there will be a great deal of interest and Vigil will be recording the webinar, so it is accessible to others in the future.

To RSVP for the webinar, please click:


Jan 26 2023


12:30 pm - 1:30 pm
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