Heidi Edwards Featured on People and Perspectives Radio Program
THE CENTRAL PA PEOPLE AND PERSPECTIVES PODCAST features Jenna Clay and Christine Ricci who each week discuss a topic that...
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Conference hosted by UCI and sponsored by CIRM
March 25-27, 2023, over 60 doctors, researchers, ALSP patients and caregivers gathered at the University of California, Irvine to partner...
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The 1st Global ALSP Medical & Scientific Advisory Council
Sisters’ Hope Foundation is excited to launch the 1st Global ALSP Medical & Scientific Advisory Council. The SHF Medical & Scientific...
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ALSP Aware Program from Vigil Neuroscience
Since Vigil Neuroscience was founded in 2020, our team has been dedicated to developing a treatment for ALSP. We are...
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Bridge Lighting Schedule
ALSP Awareness Month 2023 Bridge Lighting Pictures and Schedule "My goal in 2022 was for just one person to see...
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American Brain Foundation
Thanks to the hard work and dedication of our Board Member, Kim Cade, ALSP has been added to the Diseases...
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“Find Your Voice”
It's "Find Your Voice" Friday! Last year was hard on me for various reasons but one day I decided I...
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ALSP Community Webinar
Vigil Neuroscience recently organized and sponsored a webinar pulling together advocacy and research for the ALSP community. Vigil is dedicated...
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Cacie Finley (May 22, 1984 – January 24, 2023)
The ALSP Community has lost a beautiful woman, Cacie was known in our small community from the day she connected...
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Phase 1 Clinical Trial Evaluating VGL101
When you start a non-profit to save your family from a devastating neurodegenerative disease, it is really difficult to “take...
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Please join Sisters’ Hope Foundation in welcoming our newest Board Members
Erin Sullivan Erin will be leading the Patient & Caregiver Support Group meetings beginning in 2023. Erin has been an...
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EndALSP Fundraiser was a huge success!
Featured in THE PORTERVILLE RECORDER ALSP fundraiser raises more than $20,000 More than 200 people attended the End ALSP...
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Raising Awareness for ALSP
https://youtu.be/hsRlTwUJlRo Thank you to Kim and Janie for raising awareness and hosting the END ALSP Fundraiser in Porterville, CA...
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Betty Ramsey (June 24, 1959 – August 25, 2022)
It is with a heavy heart we share the passing of another ALSP patient. Betty passed away on August 25,...
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American Brain Foundation – ALSP Article
Kim has been a huge advocate for ALSP and Sisters' Hope Foundation. This article is a true representation of Kim's...
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VGL101 Granted Orphan Drug Designation
Exciting news for ALSP patients! VGL101 received U.S. Food and Drug Administration (FDA) orphan drug designation: In July, the FDA granted...
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ALSP Community mourns the loss
It is with a heavy heart that we share the passing of an ALSP family member. Mark lost his battle...
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Life Changes in the Blink of an Eye
You never know how much you have until suddenly you don’t. In other words, we take things for granted all...
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My husband’s journey
Daniel and I married in 2006. At the time he told me that he had family members who had been...
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Vigil Neuro Expands VGL101 Phase 1 Trial to Australia
Vigil Neuroscience Expands VGL101 Phase 1 Trial to Australia - Received approval from the Human Research Ethics Committee in Australia...
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Join the ALSP registry
During the month of June, Alzheimer’s and Brain Awareness month, contribute to furthering ALSP understanding and research by donating to...
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Sisters’ Hope Foundation added to NIH – GARD
Sisters' Hope Foundation has been added to the NIH - Genetic and Rare Diseases Information Center under the disease name...
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1st White Matter Rounds Symposium & Round Table
Please join us for the 1st White Matter Rounds Symposium and Round Table on Tuesday, June 7, 2022. The purpose...
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