Vigil Neuroscience reports Interim Data from Phase 2 Clinical Trial
Vigil Neuroscience presented their findings from 6 patients during the first 6 months of the Phase 2 Ignite proof-of-concept clinical...
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Potential use of glucocorticosteroids (GCs) in CSF1R mutation carriers
The thoughts presented below by Drs. Dulski, Stanley, Chitu and Wszolek have significant limitations and must be read only as...
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Genetic Testing Survey
Survey about genetic testing Vigil Neuroscience, a biotechnology company researching potential treatments for ALSP, is engaging with the ALSP patient...
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What does it mean? 12 New ICD-10 Codes Webinar
United Leukodystrophy Foundation invites you to join the webinar presented by Dr. Joshua Bonkowsky and Monika Baker of University of...
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Breaking News!
Effective October 1, 2023, ALSP will have an ICD 10 Code. Know Your Code…G93.44 for ALSP! ALSP Community: What can...
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A Journey to Genetic Testing – The Results
“Your test is negative.”... Hearing these words, my husband and I just clung to each other and cried. There are...
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Become a Team Leader for our Virtual 5K!
Interested in the ALSP Run N' Roll Raleigh but not local to Raleigh, NC? No worries! Participate virtually from anywhere...
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A Journey to Genetic Testing – Part 2
On an early morning, with sleep in my eyes and coffee in hand, I answered the phone prepared for an...
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ALSP Run N’ Roll – 5K For The Cure
We need your help spreading the word on our 1st in-person Run N’ Roll 5K. If you are not local...
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A Journey to Genetic Testing
by Erin Sullivan I often ask myself, “How did I get here?” No one anticipates having a familial genetic mutation...
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2023 ALSP Community Conference
The ALSP Community was together for the first time to interact with physicians, scientists and researchers who understand the complexities...
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Heidi Edwards Featured on People and Perspectives Radio Program
THE CENTRAL PA PEOPLE AND PERSPECTIVES PODCAST features Jenna Clay and Christine Ricci who each week discuss a topic that...
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Conference hosted by UCI and sponsored by CIRM
March 25-27, 2023, over 60 doctors, researchers, ALSP patients and caregivers gathered at the University of California, Irvine to partner...
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The 1st Global ALSP Medical & Scientific Advisory Council
Sisters’ Hope Foundation is excited to launch the 1st Global ALSP Medical & Scientific Advisory Council. The SHF Medical & Scientific...
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ALSP Aware Program from Vigil Neuroscience
Since Vigil Neuroscience was founded in 2020, our team has been dedicated to developing a treatment for ALSP. We are...
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Bridge Lighting Schedule
ALSP Awareness Month 2023 Bridge Lighting Pictures and Schedule "My goal in 2022 was for just one person to see...
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American Brain Foundation
Thanks to the hard work and dedication of our Board Member, Kim Cade, ALSP has been added to the Diseases...
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“Find Your Voice”
It's "Find Your Voice" Friday! Last year was hard on me for various reasons but one day I decided I...
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ALSP Community Webinar
Vigil Neuroscience recently organized and sponsored a webinar pulling together advocacy and research for the ALSP community. Vigil is dedicated...
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Cacie Finley (May 22, 1984 – January 24, 2023)
The ALSP Community has lost a beautiful woman, Cacie was known in our small community from the day she connected...
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Phase 1 Clinical Trial Evaluating VGL101
When you start a non-profit to save your family from a devastating neurodegenerative disease, it is really difficult to “take...
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Please join Sisters’ Hope Foundation in welcoming our newest Board Members
Erin Sullivan Erin will be leading the Patient & Caregiver Support Group meetings beginning in 2023. Erin has been an...
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