Jeff’s Journey: Kim’s Voice
Thanksgiving week, 2018, I went on a hike with my wife and my brother, Jeff. After a mile of walking,...
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Being Holly: A Caregiver Story
Being Holly’s Caregiver: My Life Caring for an ALSP Patient My name is April Aurentz and I am the office...
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A Sister’s Hope: the Story Behind Sisters’ Hope Foundation
I’m Heidi Edwards, President and Founder of Sisters' Hope Foundation, a non-profit organization supporting those affected by adult-onset leukoencephalopathy with...
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Support Group Meeting
Join Sisters' Hope Foundation on March 29 at 7pm for a presentation on the Patient Registry and Natural History Study...
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March is ALSP Awareness Month
ALSP Awareness Month 2022 is officially underway, and Sisters’ Hope Foundation wants you to help us raise awareness and celebrate this...
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Bridging the Gap in ALSP Awareness
We are counting down to ALSP Awareness Month! The importance of March and why it has been chosen as ALSP...
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ALSP Awareness Month
We are so excited to be one week away from ALSP Awareness Month 2022. Sisters’ Hope Foundation has exciting events,...
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Mayo Clinic, Florida
February 15, 2022, did not start out as every other day. I had flown to Jacksonville, Florida the day prior...
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Frontiers Neurology – ALSP Publication
I am pleased to share with you the ALSP position paper which is now published in Frontiers Neurology: https://doi.org/10.3389/fneur.2021.788168. This...
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Josh – ALSP Story & Fundraiser
Josh's Story and T-shirt Fundraiser: If you are interested in a shirt, the orders need to be placed and...
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Alvernia University Magazine Winter 2022
Alvernia University Magazine Winter 2022: Did you know: The sisters, Heather Brenneman Boyer, Heidi Brenneman Edwards and Holly Brenneman...
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ALSP Patient Registry app is available!
Vigil and the Sisters' Hope Foundation are proud to announce the launch of the ALSP Registry app. Patients and family...
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Natural History Study – Dr. Gelfand, UCSF
Great news! The University of California San Francisco site is now open! The University of California San Francisco is now...
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Life’s A Tripp Shirt Fundraiser
Today we are rolling out the Life's a Tripp shirt fundraiser for ALSP patient Albert Tripp! The online shop is...
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Happy New Year!
A New Year calls for making goals. SHF has set their fundraising goal for 2022! It's a hefty goal but...
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A Guide for Understanding ALSP & A Guide for Caregivers
It's amazing what can happen when we work as a team to raise awareness and provide support for rare diseases....
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Natural History Study – Open Sites
Great news! The Mayo Clinic in Jacksonville Florida, St. Joseph's Health Care in London Ontario and Parkinson's Disease & Movement...
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Genetic Testing in Canada is now available through Invitae.
Genetic Testing for ALSP patients in Canada: If you are an ALSP patient located in Canada and are interested in...
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Check out what all the fun was about at “Hope for the Holidays”
VIDEO: Thank you to everyone who made our 'Hope for the Holidays' auction a huge success! Check out what all...
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New Merchandise Available in the Online Store
You do not want to miss out on our newest merchandise available from Sisters' Hope Foundation. Your purchase directly helps...
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“Hope for the Holidays” Hope Auction was a huge success, raising $18,390.00
Sisters' Hope succeeded because of the support of so many volunteers and donations. Thank you to the Schuylkill Masonic Lodge...
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The ALSP patient registry pre-study survey is LIVE!
Completing this is the first step for patients who want to participate in the Vigil Neuroscience global digital ALSP patient...
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Kim’s ALSP Story
“In July, I had a genetics test done to see if I carry the CSF1R gene variant the same variant...
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