Patient, Family & Caregiver Stories

Kim’s ALSP Story

“In July, I had a genetics test done to see if I carry the CSF1R gene variant the same variant...

Heidi Edwards’ Story

I’m Heidi Edwards, President and founder of Sisters Hope Foundation, a non-profit organization supporting families struggling with Hereditary Diffuse leukodystrophy...

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Sisters' Hope Foundation is a non-profit corporation registered in the Commonwealth of Pennsylvania and a 501c3. Contributions to Sisters' Hope Foundation are tax deductible to the extent permitted by law.
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Disclaimer: Sisters’ Hope Foundation is providing the above information to the best of their knowledge. The organization is not advocating for any particular company or method. Consultation with a genetic counselor or clinical geneticist prior to and following testing is recommended. Questions related to your risk of developing symptoms of ALSP should be directed to your doctor.

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