COMING SOON
PATIENT REGISTRY
Sisters’ Hope Foundation wants to ensure all patients register and contribute to developments in treatments and a cure for ALSP. Registries are critical to developing a treatment and cure for ALSP and testing those treatments in clinical trials. By enrolling in a patient registry, patients and family members can take action to help researchers learn more about ALSP.
Sisters’ Hope Foundation has been working to create a patient registry for ALSP patients and care partners. Stay tuned for more details to be released in the near future.