The ALSP patient registry pre-study survey is LIVE!

Completing this is the first step for patients who want to participate in the Vigil Neuroscience global digital ALSP patient registry. 

At Sisters’ Hope Foundation, we are encouraging ALSP patients and CSF1R carriers to participate in this registry to enable the scientific community to learn more about ALSP, in the hope that the results will provide information to improve future treatment.  

The full ALSP registry study will be live by the end of this year in the United States and early in 2022 in other countries.  

You can start engaging now by completing this pre-survey at