During the month of June, Alzheimer’s and Brain Awareness month, contribute to furthering ALSP understanding and research by donating to the Sisters’ Hope Foundation!
Vigil Neuroscience, Inc. and Sisters’ Hope Foundation, in collaboration with Vitaccess, have launched the ALSP Registry app, a digital registry for those affected by ALSP and the CSF1R gene mutation.
Individuals (and caregivers) can take action to help researchers learn more about ALSP and the CSF1R gene mutation by sharing their journey using the free ALSP Registry app on their smartphones. The registry aims to measure the impact of ALSP on the lives of patients, their caregivers and their families.
This June, Vitaccess (the app developer), will donate $50 to the Sisters’ Hope Foundation for each participant who downloads the registry app and joins the study. All proceeds will be used to further Sisters’ Hope Foundation’s mission.
To participate, download the free ALSP Registry app on your smartphone, via one of the following links:
For your Android smartphone: https://bit.ly/3FYSoqY
For your iPhone: https://apple.co/3yHUE4z
If you agree to participate in the study, you (or your caregiver) will be asked to complete some surveys about your experience with ALSP. New surveys will be available for you to complete every 3 months, and it will take no more than 30 minutes to complete each time.
We look forward to working with you on this important project!