ALSP. Support. Awareness. Advocacy. Cure.

We’re in this together.

Sisters’ Hope Foundation provides support, resources and advocacy for those impacted by an ALSP diagnosis to improve their quality of life and build community.

Our mission is to empower families affected by ALSP through increasing awareness, educating the public, advocating for research and funding to improve treatment options and providing assistance to those in need.

Virtual Support Group

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Friday, May 23rd

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8pm EST/7pm CST

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Virtual Support Group ● Friday, May 23rd ● 8pm EST/7pm CST ➔

Join us for fundraisers, outings, conferences and support.

get involved

Upcoming Events

Information about causes, symptoms and diagnosis.

what is alsp?

Understanding ALSP
Trials & Treatments

The latest on research studies, clinical trials and treatments.

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GIVE HOPE

2025 ALSP

Community Conference

Philadelphia, Pa | June 20-21, 2025

Proud Partners With

NEED TO TALK?

Newly diagnosed? Looking for more information?

Schedule a one-on-one meeting with our team.

Our May newsletter is here! Want a copy in your inbox? Sign up on our website, www.sistershopefoundation.org! #alsp #raredisease #leukodystrophy
Our ALSP EL-PFDD is only one month away! We encourage all patients and care partners (both current and former) to participate virtually or in person in Philadelphia, PA. Register Here: https://zurl.co/qeGuI More information, including a list of di
During ALSP Awareness Month, we're highlighting members of our Medical & Scientific Advisory Council. Dr. Zbigniew K. Wszolek, M.D., a board-certified neurologist, clinical neurophysiologist and electrodiagnostic medicine consultant, is a consul
A huge thank you to Britany Guzman Alcantar for sending us these photos of the Bank of America Plaza lit with pink and purple in Dallas, TX last night! The lightings continue tonight at the Zakim and Longfellow Bridges in Boston. Head to the links b
To raise ALSP Awareness this May, we’re lighting up landmarks across the country in pink & purple. If you live near one of these bridges, snap a photo and send it to info@sistershopefoundation.org. Here’s our 2025 lighting schedule s
During ALSP Awareness Month, we're highlighting members of our Medical & Scientific Advisory Council, starting with our chair, Dr. Jennifer Orthmann-Murphy, MD, PhD. Dr. Orthmann-Murphy is an assistant professor of Neurology at the University of