ALSP. Support. Awareness. Advocacy. Cure.

We’re in this together.

Sisters’ Hope Foundation provides support, resources and advocacy for those impacted by an ALSP diagnosis to improve their quality of life and build community.

Our mission is to empower families affected by ALSP through increasing awareness, educating the public, advocating for research and funding to improve treatment options and providing assistance to those in need.

Virtual Support Group

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Friday, May 23rd

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8pm EST/7pm CST

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Virtual Support Group ● Friday, May 23rd ● 8pm EST/7pm CST ➔

Join us for fundraisers, outings, conferences and support.

get involved

Upcoming Events

Information about causes, symptoms and diagnosis.

what is alsp?

Understanding ALSP
Trials & Treatments

The latest on research studies, clinical trials and treatments.

learn more

GIVE HOPE

2025 ALSP

Community Conference

Philadelphia, Pa | June 20-21, 2025

Proud Partners With

NEED TO TALK?

Newly diagnosed? Looking for more information?

Schedule a one-on-one meeting with our team.

We're getting so close to our ALSP EL-PFDD! We encourage all patients and care partners (both current and former) to participate virtually or in person in Philadelphia, PA. Now, more than ever, let your voices be heard! Let us know in the comments if
Here’s the last set of results from our ALSP: Symptom, Impact & Treatment Survey! #alsp #leukodystrophy #raredisease
During ALSP Awareness Month, we're highlighting members of our Medical & Scientific Advisory Council. Dr. Roberta La Piana is Assistant Professor in the Department of Neurology & Neurosurgery and Associate Member of the Department of Diagnos