ALSP.
Support. Awareness. Cure.
We’re in this together.
Sisters’ Hope Foundation provides support, resources and advocacy for those impacted by an ALSP diagnosis to improve their quality of life and build community.
Our mission is to empower families affected by ALSP through increasing awareness, educating the public, advocating for research and funding to improve treatment options and providing assistance to those in need.
Did you know? ALSP has multiple genes that can cause the disease. CSF1R is the most well known but BANDDOS, AARS1, AARS2 and in some cases the genetic mutation hasn’t been determined as of yet. That makes ALSP an umbrella term.
Virtual Support Group Meetings
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Monthly
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Visit the EVENTS page for Dates
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7pm ET
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Virtual Support Group Meetings ● Monthly ● Visit the EVENTS page for Dates ● 7pm ET ➔
Join us for fundraisers, outings, conferences and support.
Upcoming Events
Information about causes, symptoms and diagnosis.
Understanding ALSP
Trials & TreatmentsThe latest on research studies, clinical trials and treatments.
GIVE HOPE
2025 ALSP
EL-PFDD
Thank you for your interest and participation in the ALSP Externally-Led Patient Focused Drug Development Meeting (EL-PFDD). Your experience and insight are extremely valuable and will guide future drug development.
Proud Partners With
NEED TO TALK?
Newly diagnosed? Looking for more information?
Schedule a one-on-one meeting with our team.
