ALSP Externally-Led Patient Focused Drug Development Meeting & the Voice of the Patient Report
ALSP Patient-led Listening Session
Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia, also known as ALSP is the disease that brings us before the FDA. Here are the cold hard facts that make ALSP so horrific and devastating. It is a debilitating disease that hits the young in the prime of life, symptom onset typically occurs between 30-50 years of age, leaving in its wake a life cut short, financial ruin, and shattered families…
News & Annual Reports
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2024 CIRM Annual Report With Heidi Edwards
February 6th, 2025
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Total Product Life Cycle Advisory Program
September 27th, 2024
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Vigil Neuroscience Clinical Development Strategy Update
July 24th, 2024
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PA Declares May ALSP Awareness Month
May 9th, 2024
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Clinical Overlap of ALSP as MS
April 26th, 2024
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Igniting a Year of Hope
April 10th, 2024
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Know Your ICD-10 Codes
March 4th, 2024
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SHF Outlook for 2024
February 6th, 2024
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2023 Year in Review
February 26th, 2024
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Rare Community Profiles: Unraveling the Genetic Threads
February 26th, 2024
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Vigil Neuroscience Interim Data from Phase 2 Clinical Trial
November 17th, 2023
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Potential Use of GCs in CSF1R Mutation Carriers
November 2nd, 2023
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ALSP Will Have An ICD-10 Code
September 29th, 2023
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First Global Medical & Scientific Advisory Council
April 19th, 2023
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ALSP Aware Program from Vigil Neuroscience
April 6th, 2023
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Conference Hosted by UCI, Sponsored by CIRM
March 23rd, 2023
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Phase 1 Clinical Trial Evaluating VGL101
January 2nd, 2023
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Welcome New Board Members
November 23rd, 2022
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EndALSP Fundraiser
September 30th, 2022
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American Brain Foundation: ALSP Article
August 23rd, 2022
