ALSP. Support. Awareness. Advocacy. Cure.

We’re in this together.

Sisters’ Hope Foundation provides support, resources and advocacy for those impacted by an ALSP diagnosis to improve their quality of life and build community.

Our mission is to empower families affected by ALSP through increasing awareness, educating the public, advocating for research and funding to improve treatment options and providing assistance to those in need.

Virtual Support Group

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July Date Coming Soon

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8pm EST/7pm CST

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Virtual Support Group ● July Date Coming Soon ● 8pm EST/7pm CST ➔

Join us for fundraisers, outings, conferences and support.

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Upcoming Events

Information about causes, symptoms and diagnosis.

what is alsp?

Understanding ALSP
Trials & Treatments

The latest on research studies, clinical trials and treatments.

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GIVE HOPE

2025 ALSP

EL-PFDD

Thank you for your interest and participation in the ALSP Externally-Led Patient Focused Drug Development Meeting (EL-PFDD).  Your experience and insight are extremely valuable.  As mentioned during the EL-PFDD, Sisters' Hope Foundation has a form available for the next 30 days to share any other insights that come to mind in the following days.  All of the comments submitted in this way will also be included in the Voice of the Patient Report.

Proud Partners With

NEED TO TALK?

Newly diagnosed? Looking for more information?

Schedule a one-on-one meeting with our team.

💜 What an incredible weekend with our ALSP Community! On Friday, our EL-PFDD shed light on the struggles of living with ALSP and community preferences for future treatments. It was a powerful and emotional day filled with amazing insights for our V
To our in person and virtual EL-PFDD participants: Thank you for your interest and participation in the ALSP Externally-Led Patient Focused Drug Development Meeting (EL-PFDD). Your experience and insight are extremely valuable. As mentioned during
The countdown is on! Two days until the ALSP community is together in Philadelphia! We'll be reminiscing on all that has been accomplished and looking forward to the future of the latest breaking research and advancements as we work toward a cure f
Have you heard?! Now through June, 21st: An anonymous donor will be giving a 100% match on all donations made to Sisters' Hope Foundation up to $5,000! Use this link to donate: https://zurl.co/1IoY0 (Viewing this on Instagram? Head over to our Face