VGL101 Granted Orphan Drug Designation
Exciting news for ALSP patients! VGL101 received U.S. Food and Drug Administration (FDA) orphan drug designation: In July, the FDA granted orphan drug designation to VGL101... read more
Welcome to
Sisters’ Hope Foundation for ALSP
Connecting ALSP patients, families and caregivers.
Sisters’ Hope Foundation is a 501(c)3 non-profit organization dedicated to ALSP patients around the world. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and creating connections for the ALSP community. Our mission is to see the first survivor of ALSP.
What is ALSP?
Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) is a rare neurological condition caused by an autosomal dominant genetic mutation in the CSF1R (colony-stimulating factor 1 receptor) gene. ALSP is characterized by symptoms of reduced cognitive function and mobility.
Thank you to Our 2022 Sponsors:
(Hope)
(Compassion)
Interested in Sponsorship Opportunities, contact info@sistershopefoundation.org
Our Affiliations:
News & Stories
ALSP Community mourns the loss
It is with a heavy heart that we share the passing of an ALSP family member. Mark lost his battle with ALSP on Monday, August... read more
Life Changes in the Blink of an Eye
You never know how much you have until suddenly you don’t. In other words, we take things for granted all the time. Nothing prepares you... read more
Upcoming Events
