VGL101 Granted Orphan Drug Designation
Exciting news for ALSP patients! VGL101 received U.S. Food and Drug Administration (FDA) orphan drug designation: In July, the FDA granted orphan drug designation to VGL101... read more
Sisters’ Hope Foundation is a 501(c)3 non-profit organization dedicated to ALSP patients around the world. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and creating connections for the ALSP community. Our mission is to see the first survivor of ALSP.
Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) is a rare neurological condition caused by an autosomal dominant genetic mutation in the CSF1R (colony-stimulating factor 1 receptor) gene. ALSP is characterized by symptoms of reduced cognitive function and mobility.
Exciting news for ALSP patients! VGL101 received U.S. Food and Drug Administration (FDA) orphan drug designation: In July, the FDA granted orphan drug designation to VGL101... read more
It is with a heavy heart that we share the passing of an ALSP family member. Mark lost his battle with ALSP on Monday, August... read more
You never know how much you have until suddenly you don’t. In other words, we take things for granted all the time. Nothing prepares you... read more