Sisters Hope Foundation for ALSP

Connecting ALSP patients, families and caregivers.

Sisters’ Hope Foundation is a 501(c)3 non-profit organization dedicated to ALSP patients around the world. Our goal is to increase awareness and understanding of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), support those living with or caring for those living with ALSP and creating connections for the ALSP community. Our mission is to see the first survivor of ALSP.

What Is Alsp

Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) is a rare neurological condition caused by an autosomal dominant genetic mutation in the CSF1R (colony-stimulating factor 1 receptor) gene. ALSP is characterized by symptoms of reduced cognitive function and mobility.

News & Updates

Breaking News!

Effective October 1, 2023, ALSP will have an ICD 10 Code. Know Your Code…G93.44 for ALSP! ALSP Community: What can YOU do to help? It […]

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