Virtual Support Groups
Have a question you need advice on? Want to meet other patients and care partners? Join us for our bi-annual Support Groups! All meetings are held via Zoom at 7pm EST/6pm CST. Our support groups are an open discussion and forum for anything you want to talk about. We're looking forward to seeing you there!
Private 1-on-1 Meeting
Connect directly with Heidi Edwards, President & Founder.
Private Facebook Group
Connect with ALSP patients and care partners from around the world along with Sisters’ Hope Foundation staff!
Asymptomatic Carriers
We hold bi-annual virtual support groups for asymptomatic carriers of the CSF1R mutation, BANDDOS, AARS1/AARS2 mutations which cause ALSP. More information can be found on the Events tab.