Madi is currently a Junior at Penn State University studying a Bachelor of Science in Nursing. After graduating, she plans to pursue a career working as a Pediatric ICU Nurse and eventually go back to school for her Master’s degree.

Madi has had 5 family members pass away from ALSP, including her mother, Heather. Madi was the first to mention the change she started to see in her mom and expressed those feelings with her Aunt Heidi. Her mom underwent the Bone Marrow Transplant, as that was her only chance, where she passed away in August of 2020 at the age of 45. Following her moms passing, Madi decided to get genetic testing done when she turned 18, to see if she too carried the mutation. Madi tested negative for the CSF1R mutation. This led to her passion for talking to the younger generation about the importance of genetic testing. Madi is also a part of the Young Adult Ambassador Program with Sisters’ Hope Foundation.