April 22, 2024

In the intimate revelation of her family’s struggle with ALSP, Janie Dignam gives voice to a reality that many families face in silence.

The contributions from our Medical & Scientific Advisory Council not only validate Janie’s experiences but also echo the collective aspirations of medical professionals who are dedicated to improving the trajectory of ALSP treatment. Their insights bring us closer to the hope for a future where the promise of better care and breakthrough treatments becomes tangible for each patient.

Janie’s story, brimming with resilience, acts as a reminder of the profound impact that a tight-knit community and focused research can have. Her story is an appeal for compassion and action, urging us to rally behind the tireless pursuit of a cure and to uplift the spirits and lives of those battling ALSP.

Janie’s story is one of many shared experiences, and we hope that her courage to share hers inspires more of our community to raise their voices for the sake of awareness.