Misdiagnosed: 3 Families Unite Over Rare Disease ALSP | A Journey for Awareness & Cure

August 15, 2022

Three different families with different misdiagnoses lead them on one journey to raise awareness and ultimately save their families from the devastation of ALSP.

ALSP is caused by a mutation on the CSF1R gene. It is not ALS, front temporal dementia or multiple sclerosis. It’s an ultra-rare leukodystrophy.

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