ALSP. Support. Awareness. Advocacy. Cure.

We’re in this together.

Sisters’ Hope Foundation provides support, resources and advocacy for those impacted by an ALSP diagnosis to improve their quality of life and build community.

Our mission is to empower families affected by ALSP through increasing awareness, educating the public, advocating for research and funding to improve treatment options and providing assistance to those in need.

Virtual Support Group

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Friday, March 28th

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8pm EST/7pm CST

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Virtual Support Group ● Friday, March 28th ● 8pm EST/7pm CST ➔

Join us for fundraisers, outings, conferences and support.

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Upcoming Events

Information about causes, symptoms and diagnosis.

what is alsp?

Understanding ALSP
Trials & Treatments

The latest on research studies, clinical trials and treatments.

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GIVE HOPE

2025 ALSP

Community Conference

Philadelphia, Pa | June 20-21, 2025

Proud Partners With

NEED TO TALK?

Newly diagnosed? Looking for more information?

Schedule a one-on-one meeting with our team.

We're overwhelmed by the response we've already received on our ALSP survey and we need just a few more to reach our goal by March 3rd (one week)! Remember, the survey can be filled out by patients and their care partners. You can fill out the surve
We've been working on something behind the scenes and we're so excited to announce... Our brand new Sisters' Hope Foundation website is now live! We made it super user-friendly and easier to find all the important information you're looking for! ht
The Sisters' Hope Foundation externally-led patient focused drug development (EL-PFDD) session will be held on Friday June 20th, 2025. Information and insights gained during this meeting will be summarized in the "Voice of the Patient" repo
💜 Support group reminder! Tonight! Have a question you need advice on? Want to meet other patients and care partners? Join us for our virtual February Support Group on Friday 2/21 at 8pm EST/7pm CST. Our support groups are an open discussion and fo
What a night! On Friday 2/7, Sisters’ Hope Foundation and Kim Cade hosted the Hope for ALSP Benefit at the Madonna Inn in San Luis Obispo, CA. The benefit included dinner, dancing and live & silent auctions in the theme of Eats, Drinks and
In honor of rare disease month, we’re sharing some rare disease stats. Are any of these surprising to you? #alsp #raredisease #rarediseaseawareness #leukodystrophy