FAMILY SUPPORT
alsp Inheritance & Genetic Testing
ALSP is a genetic disease caused by a mutation to the CSF1R gene and each person with the mutation has a 50 percent chance of passing it on to their children. An ALSP diagnosis can cause concern for family members about their own health and future.
While the decision to pursue genetic testing is difficult, getting tested as early as possible can allow individuals and families to do the following:
- Make decisions about life priorities and family planning
- Plan financial decisions based on potential future care needs
- Have the opportunity to participate in genetic research and clinical trials