We have event and volunteer opportunities that span all interests and time commitments. Our donors and volunteers range from individuals to corporate teams and sponsors. We can’t do this alone so please consider helping Sisters’ Hope Foundation and the ALSP Community in making a difference.
Are you passionate about volunteerism? Are you looking to donate your time to promoting a cause? We have volunteer opportunities that span all interests and time commitments. Our donors and volunteers range from individuals to corporate teams and sponsors. We can’t do this alone so please consider helping Sisters’ Hope Foundation and the ALSP Community in making a difference.
Public Relations, Media Relations and Marketing: Tara Parker – Committee Chair ([email protected])
Youth Ambassador Program: Madison Boyer – Committee Chair ([email protected])
Patient and Caregiver Support including Support Group Meetings: Erin Sullivan – Committee Chair ([email protected])
Development, Donor Relations and Community Partnerships: Kimberly Cade – Committee Chair ([email protected])
Regulatory Affairs, Advocacy Laws and Federal/State Policy: Christopher Forbes – Committee Chair ([email protected])
United States Regional Ambassadors – Represent ALSP and Sisters’ Hope Foundation in a specific geographical location based on where you reside: Heidi Edwards – Committee Chair ([email protected])
Global Ambassadors – Represent ALSP and Sisters’ Hope Foundation in the country where you reside: Heidi Edwards – Committee Chair ([email protected])
Family Ambassadors – Represent ALSP and Sisters’ Hope Foundation, educate and raise awareness in your family and local community: Heidi Edwards – Committee Chair ([email protected])
Event Fundraising – Open
Grant Writing – Open
Social Media – Open
IT Support – Open
Blog Content and Patient Stories – Open
Awareness and Educational Outreach including ALSP Awareness Month, Leukodystrophy Awareness Month and Rare Disease Day – Open
Stay current with the latest research and publications and access our archive of top-tier clinical resources.
Manage your health and improve communication with healthcare providers with your Medical Diary
Stay up to date on community events and track the ones you attended.
