Natural History Study – Dr. Gelfand, UCSF

Great news! The University of California San Francisco site is now open!

The University of California San Francisco is now enrolling patients with ALSP and carriers of the CSF1R gene to the Vigil Neuroscience ALSP Natural History Study. The physician investigator at the site is Dr. Jeffrey Gelfand. 

The study sponsor has funding to cover your travel-related costs.

We believe this study will be critical to the ALSP community as the data collected will contribute to the development of potential future treatments for ALSP. There is no investigational treatment in this trial, but you will continue to receive your usual care for ALSP.

You can find more information on the study by going to: https://clinicaltrials.gov/ct2/show/NCT05020743?term=vigil+neuroscience&draw=2&rank=1 or simply go to clinicaltrials.gov and search on ALSP.

Contact the study sponsor Vigil at [email protected]

Contact Sisters’ Hope Foundation at [email protected]